Recent Blog Posts
- Keep Fighting Eric!
- What does Google Trends tell us about Spinal Cord Injury?
- Join the Cure Warriors - Great U2FP video
- 2011 Chicago Marathon Summary
- The Patient: The Person at the Center of My Care
- Study Shows US Health Care System Fails to Meet Needs of those with Spinal Cord Injury
- Budget Cuts Reduce Disabled Transit
- New Jersey State to Cut Spinal Cord Injury Research Funds
- Recent Study on US Health Care System Performance
- Good Article on Making Babies After SCI
Special thanks to reporter Jackie Kostek for a great story!
Bank of America Chicago Marathon Wheelchair Athletes Headlined by Local Star
Unlike other disabilities, spinal cord injuries can rarely be diagnosed or fully recovered from. Even the most successful of recovery stories usually never return to their full health before the injury. Instead, Kent’s charity looks at the reality of the situation and, as he puts it, tries to raise attention for those who are much worse off than he. Which is why he is so proud of the name of his charity. Kent said that while it’s fine for some to believe that anything can be overcame, or even the worst of scenarios can be a blessing in disguise, not everyone can have those feelings.
“That’s not fair to the people who are stuck in a hospital room or can’t get up,” Kent said. “The unemployment rate is north of 65% [for the disabled]. I think spinal cord injury drastically reduces human potential. You go from being an able bodied person to a life in a wheelchair. Depending on the severity, that kind of puts a damper on your dreams. A lot of us are doing great, but you can’t forget the people that you left behind and can’t move one muscle in their body.”
That is the essence of the charity, Kent said, to improve the quality of life for those who can’t themselves. Any improvements, even the smallest of changes, can help someone move a little more and improve their quality of life.
Join Spinal Cord Injury Sucks (SCIS) at the 2013 Bank of America Chicago Marathon
- Our name is our best recruiting tool -- Spinal Cord Injury Sucks -- thanks to the efforts of Team SCIS at five Chicago Marathons in a row, people have started to take notice! Runners choose us because they like our name and this awful condition has touched their lives in some way. Train with a purpose and let people know on October 13, 2013.
- Raise money for spinal cord injury cure research and advocacy for a charity with no paid employees-- SCIS is run entirely by volunteers who passionately fight for the 4 million Americans who suffer with some degree of paralysis. Raising money for SCIS ensures that the dollars donated by your friends, family and coworkers in this difficult economic environment have the most impact. SCIS runs lean and mean, just like you.
- As a member of Team SCIS 2013, you are part of something special that began at the Chicago Marathon and gains momentum every year-- The first Team SCIS was only 7 athletes in 2008. Five marathons and nearly 150 participants later, we've dedicated over $400,000 directly to spinal cord injury research and advocacy. We have an expression: "Once a member of Team SCIS, always a member of Team SCIS." Our former athletes are our best recruiters.
- Awesome SCIS race gear for the big day-- Unlike other charities, we provide high-quality, sleek racing gear for the big day. We want you to look, and perform, your best!
- Expert marathon tips and training-- SCIS will sponsor your training through CARA (Chicago Area Runner's Association) who organizes training programs and group runs throughout the Chicago summer. You'll have one of the largest running communities providing answers for all types of marathon-related inquiries including diet, training and injury care/prevention.
- SCIS Post Race Party-- Invite your friends, family and donors to celebrate your big accomplishment at the best Sunday afternoon charity post-race party in Chicago!
- Become Part of History-- Explore the lore and history of SCIS at past Chicago Marathons
Team SCIS Members in 2012
Ready to lace up?
If you want to join Team SCIS 2013:
- Runners who already have an entry into the 2013 Chicago Marathon - We would love to have you on Team SCIS. Click here to signup for more information on how to join our cause.
Shout out to all my followers, love you guys couldn't go through this battle without your support— Eric LeGrand (@EricLeGrand52) April 18, 2013
Another exciting aspect of the research allocation to Dr. Blackmore’s lab is it the first grant that was placed due to the collaboration between SCIS and Unite2FightParalysis that began back in September 2012. U2FP and SCIS have created a world-class scientific advisory board (SAB) and Dr. Blackmore’s lab submitted a research proposal for this microscope which was approved by the SAB, enabling the allocation of funds. We have established a very effective framework to channel future lab donations and are very excited about the potential impact on chronic spinal cord injury research.
The Marquette University student newspaper gave the donation front page treatment.
Learn some more about Dr. Blackmore’s research by watching his presentation at Working2Walk in Irvine, CA in November 2012:
Check back for future updates on this important research conducted by the Blackmore lab at Marquette University.
What does Google Trends tell us about “spinal cord injury”? The results are actually quite disturbing for anyone that would like to see a more aggressive search for a cure. Google users searched for “spinal cord injury” more than ever before or after in October 2004 when Superman, Christopher Reeve, passed away due to complications from his high cervical spinal cord injury (M in chart). It then was in October 2004 that our movement lost its most recognizable face, and our most passionate advocate for a cure. Since then, as technical traders say about a stock chart, the trend is from the “upper left to the lower right.” People are searching less and less for the term “spinal cord injury”. This data clearly reveals a trend that people are less interested in spinal cord injury. In fact, the most recent data reveals that people are searching for spinal cord injury 68% less than in October 2004. Why is this happening? There are probably many reasons. Anyone with a vested interest in seeking a cure for this condition should try their hardest to reverse this trend. Less people concerned with spinal cord injury means less government money going to research, less charitable dollars raised, and less public support for disabled issues like accessibility, equal employment or health care.
NBC Chicago profiled two-time Team SCIS wheelchair racer Darwin Coligado before the 2012 Chicago Marathon. Watch:
Team SCIS wheelchair racers Adam Finney and Geoff Kent talk to FOX Chicago about their preparations for the upcoming 2012 Chicago Marathon. Watch: